Today is Remicade day which means this morning I was packing my bag and getting my comfy clothes ready for a day at the doctor’s office. I’ve said this before in posts that I try and make Remicade day suck less by making sure I have everything on hand to relax a little and feel as comfortable as possible. If I am going to be stuck in an infusion chair all day, I must be prepared.
If this isn’t your first Remicade rodeo, you probably already know this whole scoop on what you need to bring with you, but if you are just starting out on your infusion journey, take notes! The first time I showed up for my infusion I was in my work clothes with my iPhone on low battery. ROOKIE FREAKING MOVE YALL.
First I start off with what I am wearing. I always go super comfy, even if I am coming straight from work, I bring a change of clothes. I usually go for leggings or a cute pair of sweatpants on the bottom with some layers on top. I always have some type of thin material shirt or tank top with a sweatshirt or sweater over top. Usually the office is pretty cold so I love being able to snuggle up in an oversized sweater. There have been times though where blood draws or IVs have gone amuck and I’ve been stripping down in a sweat trying not to pass out, hence where the cool layer comes from. I like to rock a fuzzy sock situation when it is cold, or Ugg slippers/Ugg boots. Heaven.
I am pretty much always working while I get my infusions since my infusion days are Fridays. I make sure to bring my fully charged laptop (+ charger just in case) along with a fully charged phone. Obviously these are critical for me being able to actually do my job, but if you are lucky enough to not have to clock hours during your infusion, some key items are necessary too. I highly recommend bringing a device to watch Netflix or a read a book on. I am also a huge fan of Podcasts and Audible, so I usually listen to something while I am working. Hearing the medical beeps going off for a few hours isn’t super fun so having something else to listen to/focus on is comforting.
For listening to whatever content you choose I highly recommend AirPods. I never understood how amazing these things were until my husband got them for me for my birthday. I love that I they are wireless because you’re already hooked up to so many cords, why do we need another? I also love that I can super easily take calls from the infusion chair. AirPods have awesome sound quality not just for the user, but somehow they basically block out the background noise for whoever is on the other end of the line. I always get super self conscious when I am working from the doctor’s office because a lot of my job is taking calls. I don’t want to have to explain to whoever I am talking to why I am working while hooked up to an IV. Just not a necessary part of doing business. So that explains why I feel AirPods are so crucial.
Let’s stop here to give a big reminder to ALWAYS BRING YOUR CHARGERS. I said it before, and I will say it again.
Next thing I have got to have in my bag is DripDrop ORS for quite a few reasons. Remicade usually means blood work and always means an IV. I used to be notorious for having shriveled up, hard to tackle veins. Turns out, being dehydrated was making it worse. Well I was dehydrated because by time it was Remicade time my symptoms were flaring and, well, you know the story. Now I make an effort to handle my dehydration with DripDrop ORS the morning off and during my treatment to keep myself hydrated. It is also miserable feeling sick and dehydrated while getting an infusion. Believe me, I’ve been there before, on the brink of passing out, trying to hydrate and get your blood sugar together with an old can of ginger ale. By sipping on a big waffles vigor of DripDrop ORS, I am making sure to keep everything stable inside, so all I have to focus on is getting my infusion and getting home to rest.
To continue on the whole keeping your insides feeling good and your blood sugar normal thing, I always pack a snack. Whether I eat it or not, it is always good to have a protein packed snack on hand in case you get shaky or lightheaded. I’ve also experienced complications and delays which have kept me at the doctor’s office a lot longer than I originally expected. This means that meal times can be messed up and you can’t exactly run to the local deli with an IV in your arm. I usually opt for Bhu Keto bars, almonds, or cheese sticks to throw in my bag and snack on. These also are not obnoxious things to eat in public so I’m not disturbing my other infusion center mates.
Hopefully if you are new to infusions this will help you prep better and if you’re a vet maybe you’ll be able to add a couple of my tips to your usual list.
What do you bring for a long doctor’s visit?
Blonde babe. Maryland native. Crohn's crushing puppy mother to two sweet rescues.
Welcome to my unfiltered commentary on crushing chronic illness in your 20's and everything that goes along with that.