It’s that time of year! Time to preview the Nordstrom Anniversary Sale! I always love the Nsale, especially because it is right around my birthday so I have another excuse to treat myself. I’ve always used the sale as an opportunity to stock up on Fall essentials and clothes for work. It truly is a great time to get your seasonal essentials for a steal. My focus is usually on shoes/boots, jeans, bags, and any other higher ticket items I have been eyeing up. This year my Wish List looks very different. I mean, my life looks very different. Between Covid and maternity leave, I am pretty sure I’ll be spending most of the rest of 2020 snuggled up at home with my little one. This year my focus is on cozy essentials that will make my chilly seasons at home a little more comfortable and luxurious.
Early access for cardholders starts on August 13th and shopping for everyone begins on August 19th. You can start building your Wish List now so you have everything ready to for when its go time!
II’ve included my Wish List picks below. You can easily click the photo to shop (all pieces are linked!).
You can never have enough Barefoot Dreams blankets or really Barefoot Dreams anything. That is why I have three of these super soft items on my Wish List. I already got Baby P his own Barefoot Dreams baby blanket and I can’t wait to get the matching full size version for me to use in the nursery during our long nights in the glider together. The two cardigans are also at the top of my list because they are basically like wearing a blanket (perfect for when the temperature drops) and I can easily wear them with a nursing tank underneath.
While we are on the topic of nursing friendly pieces, I also love this pajama set and pajama shirt. I am especially excited about the set because if I can get it in time I think it would be perfect to bring in my hospital bag. If I’m going to be spending a majority of the rest of 2020 in pajamas they should be top notch.
The UGG slippers obviously go with my theme of not leaving the house. I love that these have some tread on the bottom. These are perfect for before it gets too chilly.
I did branch out into some more transitional pieces that I can wear once I make my way back out in public again. I’m eyeing up these Caslon short and long sleeve tees which I can wear to lounge around at home or I can eventually dress up. I also am loving the BP leopard joggers that can be dressed up or down as well.
Probably my most out of the house friendly pick are the infamous SPANX leather leggings. I have been debating purchasing these for a couples years and I think this year is the year I do it. When I do end up attending a social event again, I have realistic expectations for myself. The transition of my postpartum attire will be smoother if I rely on these leggings which can be comfortable and stylish.
The last thing on my list are these blush wine glasses. We’ve been in need of a new stemless set and these are just too perfect not to get. I love drinking everything out of wine glasses with a fun paper straw to spice things up so I will definitely get good use out of these. And postpartum I can finally enjoy a little wine to break them in.
So now its your turn, tell me what you can’t wait to score from the Nsale this year? Is your Wish List full of cozy pieces or are you stocking up for your return to office?
I want to share my experience, not to provide a solution, but to provide an honest perspective that maybe you can resonate with. For years I have been interested in the correlation of digestive diseases and eating disorders, specifically the lack of dual diagnosis holistic treatment options. Throwing pregnancy into the mix is a whole new game that has me digging even deeper based on my personal experience. How do we deal with the mind fuck of weight gain and body changes while in recovery from an eating disorder? On top of that, how do we manage dietary restrictions or triggers from a digestive disease in addition to the restrictions and symptoms already brought on by pregnancy? Again on top of that, how do we deal with the emotional triggers that are drudged up by these changes and the added pressure of supporting a new human life? There are a lot of questions I want to explore, but right now what I have is my story and how I have navigated it thus far.
A struggle for me in my pregnancy has been eating, specifically what to eat and how to eat enough. My background doesn’t provide the best foundation for a great relationship with food in general, but because of that I’ve worked my butt off to get to a good spot. For those who haven’t read my other posts,I struggled with an eating disorder and then on top of that my Crohn’s diagnosis fueled additional struggles and triggers. I remember in eating disorder treatment, being there with other women who were struggling with how their bodies changed during or after pregnancy. When I thought of having kids, I always braced myself for this new reality.
When I figured out I was pregnant, all of my healthcare professionals who knew my background immediately began asking me how I felt about the weight gain and my body changing. It was so early on I really didn’t have any issues, plus, I hadn’t gained any weight.
During my first trimester my digestive system was a complete wreck. I had nausea that would never go away. I would try to force myself to eat and just ended up gagging instead, unable to get anything down. My new growing baby was messing with my intestines which brought on some new Crohn’s symptoms. Things were a mess, but it was trimester one so I figured it was par for the course.
At my 12 week appointment, my OB brought up that I had lost a significant amount of weight. I was pretty caught off guard by this since I try to refrain from weighing myself at home, as that is a trigger for me. I also didn’t understand how I had lost so much weight when the only things I could stomach when feeling up to it were gluten free cupcakes and Lucky Charms. We talked about it, but it wasn’t a huge concern yet since I was hopefully going to graduate out of the nausea soon. As I left the office I remember feeling a pang of guilt because was actually proud to have someone concerned about my weight loss. That brought me back to the time when that kind of feedback fueled me. I didn’t necessarily feel guilty for having this thought. They happen and you live with them and move on. I felt guilty because I wasn’t trying to lose weight. I was doing everything in my power to give my baby all of the necessary nutrients to grow. I felt like I was failing and having these thoughts made it worse.
My doctor seemed pretty confident that my body would sort itself out over the next few weeks so I tried to push the worry from my mind. The main struggle I was having was the food that I was craving, I know I couldn’t have because they would trigger my Crohn’s. Things like donuts, waffles, and sandwiches are always a no go for me because of the gluten (yes you can get them GF but no where near the same). I worked to find gluten free options but a lot of those are heavily processed though so that brought in more concerns of messing with my digestive system. I also felt shame for relying on processed foods since I was supposed to be giving my baby the best nutrients. I felt like no matter what I did, I was doing something wrong. Everyday I woke up in a stress fog of what the fuck do I eat today… what the fuck CAN I eat today. I also was balancing the regular pregnancy restrictions on top of those to save my digestive system. For example, I was disgusted by meat and could only stomach seafood, but I had to limit how much seafood I ate. I was seriously struggling to get enough protein.
During this time when I was going through my food crisis, we were also going through a global pandemic. Over these weeks I just mentioned, I also had to relocate from my house, live apart from my husband, and wasn’t able to go out in public to grocery shop for myself. This added a whole new layer onto the problem. I know this part of the situation is not relevant for everyone, but I felt it worth mentioning because it had a big impact on my life at the time. I was out of my routine, I was stressed, and I was just trying to get by. This triggered some increased Crohn’s symptoms to even further complicate things.
When I saw my doctor again, she brought up the lack of weight gain and actually more weight loss. I walked her through my struggles and she basically told me to just eat whatever I can. The baby will be fine if its McDonalds fries or a vegan smoothie bowl. He just needs to get fed. This made me feel better about what to eat, but didn’t change the fact that I rarely felt like eating. (Quick side note here: my doctor did prescribe me anti nausea medication, but it made me so drowsy I could only take it in the evenings. I would pass out immediately so while it is great for sleep, I can’t eat while I am sleeping.) Another issue I had was my natural reaction to not eat when I was having Crohn’s symptoms. Over the past however many years, it is like I have been conditioned to avoid that pain. My stomach hurts, naturally I stop wanting to eat to avoid the pain. In those situations I revert back to liquid or soft diets until my inflammation improves. I knew my child would not be okay if I spent the next 6 months eating chicken broth and popsicles. I mean I would not even be okay if I had to do that. The discomfort I was feeling also just caused me to not feel hungry almost ever. I never thought I would be this person, but I had to remind myself to eat. I think this was escalated by me working from home and being in an environment where there was no designated lunch hour where everyone is grabbing something to eat together. I could work through the day and not even think about lunch.
I worked with my doctor to come up with a solution of supplementing my diet with Ensure shakes. These were easy for me to get down and digest, plus they would help with my protein intake. Now I want to pause here for a second. I know there are people reading this that will be mentally shaming me for not choosing a natural option or not creating a protein smoothie for myself at home, blah blah blah. Look, this is what worked for me and my life so that is that. These have been a lifesaver for me throughout this pregnancy. Of course, I don’t just drink Ensure, but knowing I have that as a safety blanket has allowed me to relax and listen to my body more on what it actually wants. It is pretty funny to me that I have seen Ensure as such a helpful tool. When I was in eating disorder treatment it was the bane of my existence. I would (not electively) drink four of these a day on top of my meals to get back to a healthy weight. I swore I would never touch them again after treatment, but now look, they are helping fuel my pregnant body and help my baby grow. Oh how the tables have turned.
My nausea and discomfort subsided a bit for the latter part of my second trimester and a quick bit of my third, but are now back in full force. I also am feeling the effects of being off of Remicade this trimester so that has added some more turbulence to the situation. I am struggling to identify which symptoms are a result of pregnancy or a result of Crohn's. Right now the cause isn't necessarily my worry, it is how I am going to make this work for the rest of the pregnancy. I have gained weight which my doctor was pleased with and it really hasn’t bothered me as much as I was worried it might. I haven’t gained a ton of weight, but enough to be on track. I am told I should feel “lucky” that this is the case. Yeah, I guess I feel lucky, but I also feel ashamed that this has been and continues to be such an uphill battle. I can’t help but wonder, how would I feel if this wasn’t the case and I did have a normal weight gain during this pregnancy? Would things feel easier or would other feelings be triggered?
To be really honest, I have had countless breakdowns crying on my sofa frustrated about food over the past 8 months. I’m in pain, but I need to eat, but I don’t want to eat and everything I actually might want will make me sick so then I’ll feel worse, but then baby needs nutrients but if I’m sick that hurts him too so what the fuck do I even do. There have been lots of tears and lots of my sweet husband showing up with ice cream, one of the only things I can almost always stomach. He doesn’t understand necessarily what I am going through, but he makes the effort to help in any way he can which is more than enough for me.
It is difficult to unpack all of the emotions that are a part of this journey. I reflect daily on how I am doing and have an honest check in with myself to make sure I am not drudging up old patterns of thinking. It’s hard, but I am confident in the work I have done and the strength that I have. This situation has forced me to revisit painful thoughts and walk through guilt and shame and I’ve decided that is okay. Pregnancy is not a mutually exclusive event and we are still handling other things, physically and emotionally as we go through it. At the end of the day, I think we need more answers on how to support pregnant women in these situations but I don’t know if those solutions are coming anytime soon. This highlights even more the importance of taking care of your own mental health as you prepare for and go through pregnancy. Find others who are going through the same thing, see a therapist, rely on your support system; do whatever you have to do, feel what you have to feel, and most importantly know that it is okay.
f you or someone you know is struggling with an eating disorder, please check out the NEDA website for details on resources and treatment options.
In May, right after my last Remicade treatment, I shared a post with an update on my experience with having Crohn’s and being pregnant. In that post I opened up a ton about this journey and ended it with a kind of “to be continued...” especially around what my treatment would look like through the rest of my pregnancy. Since then I have received a lot of questions around what my next steps were and how things have been going since that update. So here we go....
I made the decision to discontinue Remicade for the third trimester of my pregnancy. I was back and forth about this decision for months prior to making it. I got medical input from my gastroenterologist, my OB, my high risk OB, and my genetic counselor. On top of that I also did my own research and had conversations with Matt. What it really came down to is what felt right for us. As so many things with pregnancy, I feel like this is the case.
What really surprised me was the lack of certainty any of my doctors had around the decision. They presented me with facts, some more thoroughly than others, but the decision was always up to me. I appreciate that freedom, but in this situation I really craved a professional just to tell me the right thing to do. I know there are conflicting views, which I feel like I’ve heard all of from different members of my care team, but I wanted more guidance. Especially with hearing how conflicting these opinions were, I quickly realized the lack of consistency across my care team and the reality that Matt and I would have to make the final decision.
Let me backtrack a little and say, I know you always have a choice if you take a prescribed medication or go through with a specific treatment. Usually it is a lot more cut and dry though and there is a specific recommendation from your doctor based on plenty of research and experience. With Crohn’s and other autoimmune diseases it never feels as certain, and this is even more true in pregnancy. These diseases are still so misunderstood as is their effect on the body. This makes treating these diseases a challenge and even more so when you are concerned about the health of a baby.
Originally part of the reason I started on Remicade was because it has been on the market the longest and had the most studies proving that it was safe for pregnancy. This was very reassuring and I felt pretty confident about the safety of the drug. Then when Covid came into the picture things kind of hit the fan. One of the concerns of Remicade is that the effects on the baby aren’t totally known as they pass through the placenta in the third trimester. One of the risks I heard the most was that the baby could be born immunosuppressed and it could take him a while to build up his immunity after getting the Remicade out of his system. In normal times this didn’t seem so bad. It’s not like I was going to be out and about with my newborn all the time and of course I would take appropriate precautions as I do for myself. Well, once an international pandemic is running rampant, the thought of bringing my child into the world with the potential of a weakened immune system was something I could not get behind.
I continued to gather information but the situation with Covid really pushed Matt and I in the direction to stop Remicade after my last infusion at around 21 weeks. There was talk about trying to fit one more at the very beginning of the third trimester but I decided against it. I was concerned that if the baby came early that would cause an issue and I didn’t even want that to be and additional worry we had.
Originally my OB’s were pushing me to stay on Remicade throughout the whole pregnancy because if my health was bad it would impact the baby’s health. Luckily throughout the pregnancy so far my blood work has been better than it’s ever been and my symptoms have been manageable. When I knew stopping Remicade was a very real possibility, one of my gastro’s started me on Apriso (oral pills) that are safe for pregnancy and would hopefully help to soften the blow of going cold turkey off of Remicade treatments.
As I said before, I had my last treatment between 21-22 weeks and would have been due for my next treatment last Friday if I were to continue. Over the past two weeks or so, I have noticed an increase in symptoms but nothing alarming or that would be risking for baby. I’m monitoring my body closely and my OB’s are monitoring me and baby very closely, so I feel comfortable moving forward. I’m trying to make sure I keep symptom triggering things at bay, like stress, and I am being very intentional about listening to what my body (and baby) need food and sleep wise.
Overall, what I’ve realized is that pregnancy with Crohn’s requires a lot of research and following your gut (no pun intended) just like having Crohn’s without being pregnant. There really are no cut and dry answers and opinions between professionals are often very conflicting. Having the uncertainty of an unprecedented global pandemic thrown in really shakes that up as well. We had to make the decision that felt right for the baby based on the current situation. The uncertainty of if I have made the “right” decision weighs on me very hard, but I try to remind myself I am doing the best I can and that’s all I can do.
Looking at this outside of just my personal experience, I think this brings up some gaps in the healthcare system as well as reiterates the additional emotional stress those impacted by Crohn’s and other autoimmune diseases have to endure. As far as the healthcare system, let me say that I truly love my providers and trust them so much. I don’t think the uncertainty is a reflection of them, I think the issue is the underlying lack of cohesive care that could be provided through increased communication among providers. I’ve experienced this before where Crohn’s impacts so many systems in your body, you are seeing multiple doctors, but there is no consistent communication between the providers. I don’t want an OBGYN who is an expert is gastrointestinal diseases, I want one who is an expert and delivering my baby of course! That is why there are doctors specializing in different areas, but that doesn’t do us any good if there is a lack of communication between a patient’s care team. Again, I don’t think this is the fault of my providers, I think it is an issue deep rooted in our medical system. All of the uncertainty puts more pressure and responsibility on the patient to do their own research, be the liaison between doctors, and ultimately make the final decision on treatments based on often conflicting advice.
Pregnancy with Crohn’s has been quite and adventure and one I am still going through! I feel like I say this all the time, but I truly am so thankful to have this platform to share my experiences. Throughout pregnancy I’ve leaned on online resources and communities, just as I did after my Crohn’s diagnosis. I believe there is a lack of resources about such a niche topic, but a topic that still impacts so many. Hopefully getting my experiences and opinions out there will help another Crohn’s mama who is looking for support.
Blonde babe. Maryland native. Crohn's crushing puppy mother to two sweet rescues.
Welcome to my unfiltered commentary on crushing chronic illness in your 20's and everything that goes along with that.