If you followed my blog/social media before Crohnically Blonde became what it is today, you know that fashion was a large portion of the content I shared (before I even knew “content” was a thing). I have always loved fashion – cue the years of me curating a huge book of magazine clipping inspiration in high school. In college I had a brief stint in fashion school in NYC which was my teenage dream and came back home without a degree but with exposure to a new platform to curate my inspiration. Tumblr. This was in 2009 when social media was just really at the very beginning of becoming a thing. A blogger was not yet an accepted job title, and a fashion influencer was not what we know it as today. I started sharing my own personal styling and outfits on my new blog on Tumblr and eventually Wordpress. Fashion has always been something that I have loved as a part of my life. I love putting together looks, I love sharing my inspiration with others, and I actually feel high off of finding a great deal on a designer piece.
When I started Crohnically Blonde I was in not a great place as far as body image or self-esteem. Crohn’s was ripping apart my body (actually pretty literally), I didn’t have control of my weight or how my body looked thanks to the medications I was on, and I honestly was happy to live in my comfiest sweatpants every day. The last thing that crossed my mind was sharing photos of me wearing things for the world to see, drawing attention to this body I had no control over. In the past, I was used to wearing whatever I wanted and not having to forgo trends based on my bloated stomach or weirdly unexplainable weight I was putting on in weird places. Fashion, as much as I loved it, was also the least of my worries at the time.
As an outsider looking in you probably would have no idea that I have struggled so much with this over the past three years. I come to work in my cute LOFT shirts and stretchy Old Navy pants that my friend so sweetly calls my “mom pants” and there is NOTHING WRONG WITH THAT. I have figured out a “uniform” that makes me feel comfortable in my own skin for the most part which is what I wear out to social events. I stopped experimenting with styles and just sticking to safe because that is the way I would feel comfortable and draw the least attention.
This really doesn’t seem like that big of a deal, I know. But to me it really was because I was missing out on something that used to be such a big passion for me. I had come to terms with the fact that I was never going to have my pre Crohn’s body back and I should appreciate that this is what I had to work with. I should appreciate how much my body does to fight and keep it going instead of shaming it for looking “weird” here and there. The thing is, I had PERSONALLY come to terms with this but then I spent hours scrolling through Instagram comparing myself to every girl to post and outfit photo and sending myself into a panic that I could NEVER put myself in THIS body out there like that.
I know, again, to some people this may seem ridiculous. To me it is not. At this point I’m in eating disorder recovery and dealing with a body that does its own thing health wise so I am on every level feeling absolutely out of control. At the same time as much as I hate myself for not looking like and Instagram model, I hate myself for caring and letting that hold me back. I preach authenticity and am all about owning your body especially through the lifetime struggle of ED recovery. I preach these things, empower others to do them, but yet, I am terrified to post a photo of me in an outfit.
As I’ve grown in my blogging journey and participated in more events and photoshoots I have come to realize that I have to stop letting this hold me back. When you break it down I am literally NOT participating in something I am passionate about and that I love because I am scared of… what? Comparison? Judgement? Both not things that I can’t stand to be the reason I shy away from something I enjoy.
So here we are and I will continue to share with you all. I want you to know that behind that outfit photo there is purpose and meaning for me posting it. Not only am I genuinely excited to, again, share my fashion journey but I am also excited to hopefully show someone else that just because you aren’t meeting your ridiculous standard of perfection you should still go for it, put yourself out there, and don’t let it hold you back. I also hope that you all will take away from what I share that to me fashion is about feeling confident in what you are wearing and learning how to dress for your body in a way that works for you and makes you feel great. I’m sharing the real dirty deets on what I am wearing (stretchy jeans and all) because that is what is real and authentically me. So enjoy and I hope this will inspire you to continue on this never ending journey of finding self-confidence with me.
I'm really, really excited that you will be able to keep up with all of my favorite looks via LIKEtoKNOW.it (here!) or download the app! I have been a huge LTKI fan for years so I am thrilled to finally be able to use the platform to share my personal style and finds.
Photo by Jade Nikkole Photography
I’ve received quite a few messages recently asking for a health update and I realized I haven’t done one in a while so it is far overdue that I share what has been going on.
First and foremost, I have had so many other positive and exciting things happening in life that my attention has been on that and I’ve been in what I like to call “maintenance mode” health wise. Trying to get by day to day without making things worse but also I wouldn’t say really making things better. That is okay by me though! If most days I can function and live life happily I have come a long, long way in the past three years or so. I hate that this might jinx it but overall things have actually been pretty good.
By pretty good I mean by my standards of not in the emergency room and pretty much fully functioning. That doesn’t mean that my symptoms have gone away though and that other symptoms haven’t decided to manifest themselves unfortunately upon me. Those things still happen and are still there and I am going to share them with you. I feel weird sometimes going into detail about this stuff because I don’t want sympathy for what ailments I have. I know there are so many other worse things that I could be experiencing, I assure you I know that and I am so incredibly thankful that I can function the way I do. The reason I share is not to complain but it is to bring awareness. There are so many weird symptoms and problems I have run into over the years that are seemingly unexplainable by doctors and took my reading someone else’s experience to realize I wasn’t crazy. That is why I want to share. Hopefully by me sharing my health journey you can relate and maybe not feel like such a psycho.
So like I said overall my Crohn’s has been relatively under control. I am not in remission yet but slowly working towards it. I still go and get my Remicade every 6-8 weeks. Currently we are on an every 6 week schedule. That seems to be working well but the side effects still make me miserable at times. I do have to say though, when I started Remicade a little over a year and a half ago, I was totally unprepared to cope with the unavoidable side effects but as I’ve become a Remicade pro, I’ve gotten a better handle on managing them. CBD oil is my best friend in that regard. I take a small dose every day to help with pain, inflammation, anxiety, and a whole slew of other things that can be a separate post. But anyway, I amp it up after my infusion and when my side effects are bad. The side effect that is probably the most annoying is the joint pain. I can’t STAND it. I remember I went to geriatric yoga class at the YMCA, I’m not kidding you geriatric like right next to my grandpas retirement community, and I was in tears by the end because my wrists and knees were so swollen and in pain. From the former hot yoga enthusiast this was very abnormal for me. So this still happened but my CBD oil helps and I have a topical CBD cream that I use on my muscles and joints which is a huge relief as well. That is where we are with the Remicade situation.
I unfortunately got the news last time I was at the gastro for my infusion that I was long overdue for my colonoscopy/endoscopy so I had to go through that lovely experience last week. The prep definitely sucks but like the having diarrhea for hours on end isn’t that much of a shock to my body unfortunately so that’s not the part I really hate. It’s the fasting and pain and nausea from drinking that crap and the pain after the procedure. That is what really gets me. I do have to say an anesthesia nap is the best nap and I totally love the nurses at my gastro so they make the whole process a whole lot more enjoyable. I see them more than I see most of my friends and they all know my life story so… yeah. The colonoscopy/endoscopy situation was a success though. I still have inflammation in my ileum so they are upping my Remicade dose and my esophagus has some funky stuff going on but all in all not horrible! To go off on a tangent quickly I am an actual nightmare when I come out of anesthesia. Like actually satan. I’ve been known to cuss out doctors and demand a bedside cocktail just to name a few situations. I actually get very embarrassed because I spend like so much of my life with these people I can’t have them thinking I am the devil. This time I was actually really nice, chatted about dogs and Game of Thrones, requested a gingerale, you know, all normal sleepy people stuff. It takes me so long to get unconfused though and I was on some pain meds on top of it so things were not looking right from my perspective. When my doctor came in to give me my update I somehow thought he was saying I could go off of my medicine so I happily thanked him and said oh yay so I’m done with my medicine? Apparently from what my husband said this was directly after he said “we are going to up your medicine”. They both laughed, I was confused, my husband was embarrassed by me and then I reminded him that he practices the art of selective hearing often so he could CHILL and get off my back please. I actually didn’t remember anything my doctor said and had to get a debrief from Matt who so graciously accompanied me. This man COMPLAINED that he was hungry after it had almost been a full 48 hours since I had had a solid food. That’s like complaining that you have a tummy ache while your wife is in labor. He also made sure to make fun of me for yelling loudly how gassy I was while still waking up from my sedated slumber. Really keeping the love alive.
The real issue I’ve been having recently is with my sinuses. Now you wouldn’t think this would necessarily be impacted by Crohn’s but you know what HERE WE ARE. Your body is one big connected thing so what else can we expect. To give you some backstory I had sinus related surgery when I was 6 and then again about 7 years ago. That was the time I cussed out my doctor and told him I hated him and to get me out of there. During the recovery from that surgery I was also satan and begged my mom and step mom to take me back to the hospital because I was sure I was going to die. It seems dramatic, I know. But if you have had sinus surgery you know it is NO JOKING MATTER. I digress. So I got this surgery to remove my inflamed sinus tissue and then I got a really weird antibiotic resistant bacteria in my sinuses afterwards which was a hoot. I was alright for a few years but just recently it started to get worse again. Usually one of these surgeries is enough for one’s lifetime and I am hoping that will still be the case for me but like let’s be real, with my luck chances are I’ll be cussing out another doctor while coming out of sedation again soon. I won’t bore you with the whole story but basically my doctor wanted me to try a specific antibiotic but wasn’t really sure about it and then the side effects were nuts specifically in the gastrointestinal department so we had to nix that idea. Back to the drawing board, I just got a CT scan to see if the inflammation in my sinuses has returned.
Inflammation seems to just haunt me which is not unusual for Crohn’s sufferers or those suffering with other auto immune diseases as well. It took digging through the internet to find cases where sinus inflammation was linked to IBD and there is proof that it can be hence the whole your body is inflamed 24/7 and all that jazz. But I couldn’t find anything that was really helpful or someone saying here is what I did to make my sinuses better for good. So here I am waiting on the results of my CT scan and feeling like there is a large rhino running repeatedly across my face.
I’ll keep you all updated on what the results come back as. I am pretty certain this is linked to my Crohn’s in some way. Even if not directly, the inflammation piece is something we can’t ignore here. Hopefully I can get to the bottom of this so next time someone is frantically Googling “sinus pain and Crohn’s” maybe this pops up and you won’t feel so crazy.
I know this was a long one but, hey, it has been a while. I love hearing updates from you all too on your health journeys so please, please, please share via comments or if you don’t like putting your whole life out there on the internet like I do, drop me a message on Instagram!
I love when I have the chance to team up with other boss babes to promote really cool products or businesses. When Boho Babe Jewels reached out to do a collaboration I was pumped because their jewelry is so freaking cute (I'll get into details about that later), but they also are supporting a cause that I can 100% get behind.
Proceeds from one of their collections went directly to support the Crohn's and Colitis Foundation. Seriously, right up my alley. Supporting fellow Crohnies is also something I am passionate about. It is hard to have your own business or a side hustle regularly but doing it with a chronic illness is even more of an uphill battle. I know I've shared my struggles with finding time to fit everything with Crohnically Blonde into my schedule while still taking time to rest and maintain my health. I'm sure there are a ton of you badasses out there who are blazing the entrepreneurial trail while trying to keep your health on track. If so, I'd love to hear about what your hustle is and a tip for how you balance it all?
Take a look at how I styled my pieces and make sure to head over to their website to pick out some of your own. They are having a HUGE sale right now on everything (I'm talking like $15 for some great stuff) so the stars have aligned with the timing here... go check them out!
I was very excited when my two chokers showed up because I have been trying to nail the layered choker trend and have not been able to find the perfect combination. The trick is definitely to do a chunkier piece with a more delicate one layered on top. This balances out the whole look and prevents tangling. I made the mistake before of pairing two super delicate chokers and things did not end well. You can also wear them separately which is ideal for traveling because you get multiple looks in one. All of their pieces are handmade in Alabama so you know you are getting some love and positive vibes sent your way when you wear these.
I love these necklaces, I love Boho Babe Jewels in general, and I love the cause that they stand behind. Keep on killing it and go support our fellow Crohnie by treating yourself to some cute new jewelry.
Ya'll KNOW I am totally obsessed with self care and any product that I can add to my routine. Recently I was introduced to T Spheres which I have become completely obsessed with.
"What the heck are T Spheres?" is probably what you are thinking right now. Well they are a freaking life saver. They are massage balls that are infused with essential oils. It's like bringing the spa into your house.
I've been using the massage balls to number one, help with IBD related pain, and number two, help relieve muscle tension thanks to my new found hobby of attending barre class. You might be familiar with regular massage balls that you can use to roll out your muscles but these take it to the next level.
They can be heated or chilled to provide you with the optimal effect and they are infused with essential oils that align to a specific desired feeling. For example, I have lavender infused massage balls (Peace & Quiet) that I use for the evening on my shoulders and neck before I go to bed. The lavender is calming and soothing to help you relax before bedtime. In the morning or before/after I work out I use the Empower Mint to refresh and energize me.
Personally I like to chill the Empower Mint massage balls to give them an extra zing to help wake me up. I even bring these in the shower with me to roll out my muscles while my conditioner sits in my hair. #multitasking. The Peace & Quiet are my go to when I am have Crohn's related pain. I heat them and use them on my stomach and abdomen which sounds a little strange but it works like a charm.
There are so many ways that you can utilize these massage balls it is crazy. They have an entire tutorial/ video section on their website so you can make sure you are using them properly and getting the most out of their benefits. I also really love that they are so easy to travel with that you really can bring them anywhere. You can relieve your pain while sitting at your desk in the office. You can ease muscle tension when flying. You can pull them out of your purse at anytime. #preparedAF. I also love that these serve as portable ice pack and heating pads. As someone who often has to travel with both these are a space saver and super convenient. I mean... they can even go in the microwave. Can a regular massage ball do that... no.
I also love the oils from T Spheres. If you have been following along with my social media and the blog, you know oils have been my JAM recently. I love diffusing them as well as rubbing them all over me and anything else in sight. T Spheres actually also sent me some of their oils (because they saw I was clearly an oil obsessed crazy person) and I can't get enough. The lavender bath and body oil is seriously ideal to add into your nighttime bubble bath. Not only does it calm you down but it leaves your skin super smooth and moisturized when you get out of the bath. I also got to try the "Pep-Up Mint" oil which can really clear out any sinus problems you are having and wake you the heck up. I am not an early morning kind of girl so if I am showering it is speedy and I don't have time to soak in oils. I do incorporate oil by using it to moisturize my body, post morning shower. That way it sticks with me all day and I get the amazing moisturizing effects. Oh and in case this wasn't enough, these oils are hand blended and made to order so you can ensure you are getting the best and most fresh oils (also made with lots of love!).
T Spheres have become a crucial part of my self care routine and I am so incredibly happy be partnering with them to give ya'll a discount so you can try out your own! You can use my code "CROHNICALLYBLONDE" to get $5 off and free shipping until Mother's Day.
In the podcast this week my mom and I opened up about our ongoing struggles with eating disorders and recovery. We thought it was fitting because it is National Eating Disorder Awareness Week. First off, if you haven't listened to this week's episode, stop and go listen ASAP (HERE!).
In the podcast we didn't go too far into our backstories but focused more on a real time update and the continued struggles we've experienced. After the podcast went live I had quite a few people who were curious about how we got to this point and our experience when we were in the darkest parts of our experience.
So I figured why not create a post answering those questions....You can hear/read about my entire story in this post and on The F- Word podcast (episode 15). I also dive into some coping tools and a recovery focused book that I love in this post.
My mom has just recently become a huge part of Crohnically Blonde so has not yet had the chance to share her full story. Diane shared a bit about her past struggles with anorexia and how her struggles and then recovery evolved through having children and then combating Crohn's.
I hope ya'll enjoy what she has to share and I am so excited for her to continue to share her experiences and wisdom with us!
I began my issues with Anorexia in early high school, didn’t seem to have issues in college, resumed my issues after college and seemingly moved beyond my issues a few years after my second daughter was born. While in high school, Anorexia was recognized, but not discussed much and according to what I knew, not many people knew how to deal with it. My best friend was concerned and talked to my parents. I vaguely remember my parents addressing it with me and my dad trying to convince me to eat ice cream.
After college when I got married, I resumed my anorexia. I don’t remember during any of this time anyone ever telling me that I was fat or too big. It was all me. Why? Was there a gene involved? Was it a product of my apparently not so happy childhood? Was it society? Yes. No. I don’t know. I just knew that I had to carefully watch what I ate, make sure I exercised a lot and never got above a certain weight that I had determined was my healthy weight according to my perception of how I looked. And this was a full time job as I thought about it constantly. There were a couple of times that I allowed myself to gain some weight. When I was trying to get pregnant. Because at the lower weight, I didn’t have my period. During this time of trying to get pregnant, being pregnant and after the births during breast feeding, I was still very obsessed about what I ate and how much I exercised. Actually, I weighed my least amount ever when my second daughter was one.
What happened next? I don’t know exactly, but about two years later I sought help for what was diagnosed as Obsessive Compulsive Disorder. Besides medication, I saw a counselor that helped me through some issues that I didn’t realize I had. I am very good at shutting off parts of my life. Then I didn’t seem to have Anorexia any more.
Really? Okay maybe not Anorexia, but I still had body image issues which I didn’t fully acknowledge for many more years. I raised my girls knowing I had had an eating disorder so was very careful not to let my vocabulary and behavior show this or affect them. I thought I did a good job with that. Well, no I didn’t.
Today, I still have body image issues and now I have Crohns.
This is where in my story Michelle and I pick up to discuss the issues-do you mentally ever get past an eating disorder? How does it evolve as you get older? What about other health issues on top of it? What about social media?"
In honor of Eating Disorder Awareness Week, Diane and I decided to take the plunge and share our truths about ED recovery this week on the podcast.
I started my journey through treatment and towards recovery 8 years ago now and have learned that it is a just that... a journey. There is no magic switch that makes an eating disorder go away, not to mention the havoc that my Crohn's has wreaked on my body image.
It took me a long time to want to share my story so publicly, especially on my own platform, which I know seems weird coming from someone who talks about bowel movements and vomiting like it is my day job. For some reason (which we dive into in the podcast) talking about a mental illness was more difficult for me to address than talking about my physical one.
The topic of ED's and even more the topic of recovery are so near and dear to Diane and I. We've both suffered, fought, been knocked down, gotten back up again, and that is why we share our stories, as uncomfortable as it may be. You're not alone.
Whether you have an ED, have had an ED, know someone who has an ED, or just ever experienced negative self talk and put yourself down because of something related to your body, please give this a listen.
Listen to our stories, feel free to share with us yours, and lets continue to fight this stigma and utilize this community to continue healing.
Stay tuned this week because there are some more blog posts coming about ED related issues, recovery, and a whole lot of realness.
I have been down and out for the past few days because I have come down with the, much dreaded, flu. I got my flu shot early this year but being immunosuppressed and all those vaccinations don't always do the trick. I've been laying in bed for, I kid you not, the last four days. I've been feeling absolutely miserable for one, but on top of that, I'm getting very stir crazy. This has been the first few hours that I have been up to even looking at a computer screen (besides from answering critical emails because I can never totally unplug....) and of course I needed to get a new post out to bring me back in touch with the living world that is not on Netflix, Hulu, or On Demand.
I figured what more relevant that to share with y'all some at home (and most of them natural) remedies that have helped me deal with the flu this season. These can really be applied to any time you are feeling under the weather which I know is unfortunately all to common with some readers. Especially with the flu being so bad this season and so many of us being immunosuppressed (or even if you're not), I highly recommend you stock up on these supplies just in case. Anyway, you know the logic of the world, if you are prepared for something then it won't happen right? FULL DISCLOSURE ** THIS DID NOT REPLACE REGULAR MEDICINE - I like to handle things naturally when I can but messing with the flu and a subpar immune system is not cool. Tamiflu was needed. These tips are meant to supplement not replace what your doctor recommends. And in case you need reminding I am not a medical professional so always run these things by your doctor before trying.
Here we go!
First up on my list is....
I use Young Living (I'm not a rep and I don't get anything if you purchase these oils so rest assured) but I just started with these and got hooked. I mix 4 drops of Thieves, 7 drop of Eucalyptus, and 9 drops of Lavender in my diffuser and keep it going 24/7 in my bedroom while I'm sick. These past few days specifically but overall this whole season I have been seriously struggling with my sinuses and this has been one of the only things that truly has helped.
The lavender is calming and helps to relax me (and to be honest when I'm sick anything that can help me doze off is much appreciated). The thieves is known to help with respiratory health and can help to lower fevers. The eucalyptus is my personal favorite touch in this combo because it is extremely refreshing and helps the make your sinuses feel clearer. Like I said, I've kept these going most of the day and I feel like they have really helped.
I have usual combos that I like to use for bedtime put I'm going to do a whole separate post about all of the other oils I've been experimenting with.
For the past month or so I've been all about CBD oil. I've been taking it to help with anxiety, help with insomnia, and help reduce my muscle and joint pain (especially around Remicade infusions). Another whole post is coming about this too so I'm telling you for now to just trust me because you can get so many more benefits out of this stuff besides just when you are sick.
While I've been under the weather I've been using it to help with my body aches mainly. I take two droplets twice a day and it has made a night and day difference. It doesn't get you high or anything which is the most common question I have gotten but it does give and overall calming effect and help to reduce anxiety. Anxiety is already something I struggle with so it is not helpful in anyway when I am cooped up at home especially feeling sick. Thank you CBD!
You can really get any kind of these but the ones I usually like are these, just $5 generic Target brand. Usually I don't take melatonin to sleep because it actually works too well and I will be out for way longer than the time I have to sleep on a regular night. When I'm sick though, it is a different story. This time around my head hurt so bad I couldn't even watch TV or read so what else was there to do? Sleeping through the worst of it was the answer. I took two gummies and within 20 minutes I was feeling ready to snooze despite the headaches and sinus pain that was keeping me up before.
For me personally I can't recommend these as a nightly thing (I much prefer the aforementioned CBD oil) but when you have 12 hours to sleep then I give it two thumbs up.
I feel like the only time most people have drank Pedialyte is when they were toddlers or when they had some seriously hungover Sunday mornings in college. Thanks to Crohn's Pedialyte has been a must have in my household for the past many years of adulthood. I never think to drink it unless I am having a GI related situation going on but my husband insisted I was going to get dehydrated even though I don't have the stomach flu. I seriously doubted him because I was religiously sipping my water next to my bed. I hate to admit it but of course he was right. Through sweating and sleeping so much it slowed my usual water intake no matter who conscientious I was, I definitely got very dehydrated. I took swigs of Pedialyte when I could and this helped decrease my headaches as well and help me feel a bit more energetic.
You can pick up Pedialyte at pretty much and drugstore or of course, you can use it as an excuse to go to Target.
Hopefully everyone is staying well and ya'll had a way better weekend than I did! I love sharing fun tips with you but I also like to keep it real with the not so fun stuff, ie. being sick with the flu. I can only hope that even if you are not sick, you stock up your home with these essentials because they make your recovery a whole lot smoother.
Also, huge thanks to everyone who reached out via social media to wish me a quick recovery and provide me with a plethora of Netflix suggestions.
I will leave you with this as a little reminder that even if you aren't chronically ill or sick right now, we all need to recharge sometimes.
Happy Sunday ya'll!
This weekend was incredibly relaxing for me which I needed after the chaos of the holidays. I also was starting to get sick so I needed to sleep it off, hydrate, and load up on Vitamin C. It was also so damn cold here in Maryland so I rejoiced that I had a reason to stay curled up in the house.
I spent today prepping for the week and getting myself ready to crush it. I've been slammed at work with a ton of projects so getting set up on Sundays to make my mornings and my week go as smoothly as possible is so key.
Something that I always have struggled with is my morning routine. I love maximizing my sleep time which means I get up at the last minute possible to make it to work on time. I've tried to change this about myself but I just have accepted the fact that mornings aren't my thing. I get so stressed scrambling around trying to get a smoothie together and pack my vitamins, snacks, waters, for the whole day. To be honest I usually grab the quickest thing possible and bolt out the door.
This leaves me with not the greatest breakfast and trying to remember to take all of my supplements when I get home. Smoothies are such a great way to pack in veggies, fruits, and supplements/powders that make up for what you aren't getting throughout the rest of your day so I had to figure out a way to make this work.
After I listened to The Skinny Confidental podcast a couple weeks ago with Dr. Mona Vand, my life CHANGED. It seems so simple but it just made so much sense and how the heck did I not think of this before. Mona said that she preps her smoothies in pre portioned bags for each day so that she doesn't have to scramble in the morning to get ingredients together. THIS MAKES SO MUCH FREAKING SENSE.
So I've started doing this and it is a true game changer.
I wanted to show you guys what I put in my smoothies and how seriously freaking easy it is. I also have been doing this with supplements. If you have Crohn's or any chronic illness you know taking your supplements are crucial to keep your body functioning so forgetting them and not being organized with what you are taking can really screw things up.
So here are the detAILs.
Make it SUPER easy.
I usually break it down by:
Boom. Out the door.
My favorite combination is one handful of spinach, one handful of blueberries, chia seeds, maca powder, and spirulina powder. You can add regular water or coconut water if you are feeling crazy. Sometimes I mix up the consistency by adding some ice.
This is a great way to pack in nutrients at the beginning of your day and start things off the right way while not having to stress out in the kitchen in the AM.
I will do a separate post about what I am doing with my vitamins and what vitamins/ supplements I've been taking but I will just saw this for now, pre packing them for the week is a game changer.
I also have been testing out some supplements that you can just add into your water, stir, and enjoy which is also another lazy girl tip I will be sharing with ya'll once I narrow down my favorites.
All of the lazy girl tips will be coming your way so stay tuned.
While you wait, I'm dying to know what your tips and tricks are AND what are your favorite morning smoothie add ins?
There has been so much to be thankful for lately between our wedding, quality time with friends and family, and the holiday season. During exciting times of the year it is easy to get wrapped up in the fun and end up over exerting yourself so I have been making a serious conscious effort to keep myself and my health in check.
The thing with Crohn's and any chronic illness really is that it never goes away and even if it seems like it does it can always creep back up. My symptoms are something that are aways with me. On holidays, on vacations, on my wedding day, Crohn's is always the extra guest to the party. I know this sounds super depressing and at first it really was. Over time, though, I have learned to make it work and still enjoy things to the fullest in my own special way.
The reason I wanted to write this post at this time of year was because as I mentioned before it is far too easy to over exert yourself and by time Christmas and New Years come you are too sick and exhausted to celebrate. This used to be highly frustrating for me because I used to love to be at pretty much every social event or party I was invited to which was a lot during the holiday season. Now I've had to cut it back and decide what events are most important and I prioritize how I want to spend my "out" time.
You do get used to it! Your family and friends will start to respect your limits and sometimes it can actually be kind of nice to have to spend an evening snuggled up binge watching Christmas movies. I am extremely thankful for the medications and research that have helped get me to a point where my symptoms are manageable and I am thankful for the doctors who have devoted their life to finding better treatments and hopefully a cure.
Antidote asked me to be a part of a video they released featuring fellow chronic illness bloggers sharing the reasons why they are thankful for medical research. I was very excited to share my candid thoughts and be part of a group of such strong individuals who are fighting each day.
Take a look at the video below and remind yourself why YOU are thankful this holiday season.
Recently I had the pleasure of speaking with some members of the Antidote team who shared with me this new and truly helpful way to find research studies and clinical trials that not only are you eligible for but that are a perfect fit for your condition. I, myself, have been in talks with my doctor just a couple of weeks ago about potential involvement in some clinical trials coming up so this seems to have been brought to my attention at an optimal time! Anyone with a chronic illness knows that you do the majority of your own research about your condition and treatments and often are the one presenting the options you find fitting to your healthcare provider. That is why I find Antidote so valuable. This search tool gives you the opportunity to search those options and connect you with the best choices for you. Anything that I can do to make finding treatment options easier, sign me up, because you all know it can be exhausting.
My explanation does not do Antidote justice though so I have included a post from a member of their team, below, so that ya'll can get the full scoop on how Antidote can help you in your battle with Crohn's or any chronic illness for that matter.
A New Way to Find Research Studies for Crohn’s Disease
As anyone living with Crohn’s disease knows, finding the right treatment option can be a challenge. To start, there’s no one test to diagnose Crohn’s disease, so other conditions have to be eliminated as options first before a Crohn’s diagnosis can be considered.
Once you’ve been diagnosed with Crohn’s, there’s no one treatment that works for everyone. The goal of Crohn’s treatment is to reduce the inflammation that causes symptoms. Ideally, treatment also leads to long-term remission.
But for some people, standard treatments just don’t help that much. Researchers are looking into new options to better treat, and ultimately cure, Crohn’s disease.
Some treatments in development aim to block inflammation at the source instead of treating symptoms once inflammation already occurred. Research suggests that newer corticosteroids, for example, may be better at treating Crohn’s symptoms than older ones, with fewer side effects.
One new treatment path researchers are exploring involves a bacteria called Mycobacterium avium paratuberculosis (Map), which may contribute to Crohn’s disease. The bacteria causes intestinal infections in cattle that are similar to Crohn’s disease in humans. Several studies are investigating whether treating people with Crohn’s with an antibiotic for this bacteria makes a difference in symptoms.
Joining a clinical trial can be one way to access potential new treatments as well as quality care. There are currently 234 research studies looking for volunteers living with Crohn’s disease in the United States.
Before new treatments can reach patients, they must make their way through four clinical trial phases. Each phase tests the potential treatment for safety, effectiveness, or both, and volunteers are needed for each one.
Every trial has different requirements for participation, though, and it can be difficult to sift through on ClinicalTrials.gov. Though all clinical trials are lifted there, the website wasn’t designed with patients in mind, so it can be frustrating to try and find what you’re looking for.
Antidote is a health technology company that aims to solve this problem through their simple search tool. You can find clinical trials that may be a good fit for you by following a few steps:
If you’re interested in learning more about new research studies near you, start a search using the tool below.
BYLINE: Nancy Ryerson is a Digital Marketing Manager at Antidote. Prior to joining Antidote, she was on the marketing team at The Michael J. Fox Foundation and worked as as a health journalist.
I have included this tool below so that you can start to search right off of CrohicallyBlonde.com! As always, if you have any questions or comments don't hesitate to reach out.
Blonde babe. Maryland native. Crohn's crushing puppy mother to two sweet rescues.
Welcome to my unfiltered commentary on crushing chronic illness in your 20's and everything that goes along with that.